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About "Foundation For A Miracle"
The "Foundation For A Miracle" was established in 2005.
The purpose of the Foundation is to assist Rochester, NY area families
who have a family member with Friedreich's Ataxia and to
contribute to research that will one day cure Friedreich's
Ataxia.
"Foundation For A Miracle"Universal Individual Application For Reimbursement
Services
 Are you a Family with Friedreich's Ataxia
- Need help with funds - click here for the Foundation For A Miracle -
Universal Individual Application for
Reimbursement Services (A funding source for families with Friedreich's
Ataxia)
"Foundation For A Miracle"Corporate Application For Research Funds
Are you a corporation seeking
funding for Research - click here for the Foundation For A Miracle -
Corporate Application for Funds
What is Friedreich's Ataxia
Friedreich's ataxia is a neurodegenerative disease
affecting about one in 50,000 people. People who are afflicted
with Friedreich's Ataxia have degeneration of the long nerves
of the spinal cord, the cerebellum and the nerves carrying
sensation to the hands and feet. The disease is steadily
progressive and death may occur in early adulthood. While there
is no known treatment or cure for Friedreich's ataxia,
worldwide research is ongoing, and it was only five years ago
that researchers identified the gene that is linked to the
disease. Continued research will hopefully identify ways to
minimize the effects of this hereditary disease. Fundraisers
such as this event will continue to channel money directly to
the researchers working so diligently to solve this disease and
to the families who have been impacted by this
disease.
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The effects of Friedreich's Ataxia vary
greatly from one person to another.
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| If you would like to be a Foundation for a
Miracle Golf Sponsor please see the Sponsorship Form
below.
Sand Soccer
Sponsorship Form
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Where:
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Ontario Beach
Park |
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When:
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Sunday,
August 8th, 2010 |
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Times:
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9:00am:
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Registration |
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10:00pm:
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Matches
Begin |
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5:30 am -
9:00pm:
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Silent
Auction |
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Additional Information: The tournament is open
to men and women, 18 or older. Space is limited to the first 12
teams. Register soon to reserve your spot (last day of
registration is July 20th, 2010).
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Annual Golf
Tournament
Summer 2011
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Annual Golf Tournament
We
will not be holding a Golf Tournament in 2010. Please look
above for the 2010 Sand Soccer Tournament put on by the Soccer
Shack to benifit the Foundation For A Miracle.
Our 6th Annual Golf
Tournament will be held summer
2011.
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